my son has a congenital heart disease (meaning that the heart wasn't formed as properly as it should since inside the womb) called tetralogy of fallot (TOF). basically, it means that he's got a hole in his heart and the passageway connecting his heart to his lungs is a bit narrow. there are other versions of TOF though. it is thought to be a common heart disease occurring among infants (newborns).
we took him to see a paed cardiologist at the Malaysian Heart Institute yesterday. he wasn't the only baby being treated. there were quite a few other infants (2-3months old) and some children who are already 4 - 5 years of age who've been getting treatment since infant. it was somewhat comforting exchanging words with other parents there. at least we know we're not alone.
the attending cardiologist was a very friendly, amicable Malay lady in her 30s. Hariz cooperated well when she conducted tests on him. Dr None (pronounced 'no-ni) says that as with all TOF cases, corrective surgery can be done to rectify the problem and the results are often positive whereby the heart can function as normal. it was a relief to hear that coming from the doc. but on return, i checked the term on the internet and findings contradict this. it is thought that 5% of infants don't make it after surgery due to occurences of other related problems caused by the surgery itself.
it worries me.. today, we are taking Hariz to see Ustaz Harun Din. hopefully, berkat doa alim ulamak, Hariz will lead a long healthy life. please pray for my son..